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Why do digital health systems often fail trauma-affected refugees despite their legal entitlement to care?

Fragmented and Trauma-Unaware: Health Information Systems for Refugees in Finland
Olena Ocheredko, Dominik Siemon · International Conference on Information Systems (ICIS) · 2026
Illustration for: Why do digital health systems often fail trauma-affected refugees despite their legal entitlement to care?

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Key findings

  • Trauma-induced cognitive burden severely impairs refugees' capacity to navigate complex digital portals, leading to care avoidance and disengagement.
  • Digital identity authentication requiring local bank credentials structurally excludes new arrivals during their first year of residence when health needs are often acute.
  • Fragmented portals and lack of native-language interfaces generate emotional distress and force refugees to rely on informal peer channels that can spread misinformation.
  • Valuable mental health resources remain unknown to refugees for months or years because systems lack proactive, multi-channel dissemination.
  • Significant perceptual gaps exist between organizations, which view barriers as logistical constraints, and refugees, who experience them as emotional harm and institutional exclusion.

What it means for you

CIO / IT Executive

Initiate a strategic review to approve an alternative identity authentication pathway that bypasses local bank credentials, allowing newly arrived refugees to access the health portal during their first year of residence.

IT Manager

Audit the health portal's login and navigation flows to identify and log every cognitive friction point, then assign a developer to simplify the UI to accommodate trauma-induced cognitive burden.

Business Strategist

Draft a stakeholder alignment workshop agenda to bridge the perceptual gap between organizational leadership (who see barriers as logistics) and refugees (who experience them as emotional harm).

Researcher

Draft a proposal to conduct participatory usability testing directly with recently arrived Ukrainian refugees to evaluate how trauma impacts their interaction with current digital health interfaces.

Policymaker

Draft a mandatory compliance memo requiring all public healthcare digital channels to incorporate native-language interfaces and proactive, multi-channel dissemination for mental health resources.

Summary

This qualitative study investigates why digital health information systems in Finland continue to exclude Ukrainian refugees under temporary protection. The researchers conducted 75 semi-structured interviews with 35 refugees and 40 organizational stakeholders across Finland, comparing their perspectives through reflexive thematic analysis.

Problem

Despite having full legal healthcare entitlements, many refugees cannot effectively use host-country digital health systems. These platforms are designed around normative assumptions of calm, credentialed, and language-fluent users, creating systemic barriers for displaced individuals coping with war trauma and bureaucratic hurdles.

Transcript
Host: Welcome to A.I.S. Insights — powered by Living Knowledge. I'm Anna Ivy Summers. Today, we examine a study presented at the International Conference on Information Systems, 2026, by Olena Ocheredko and Dominik Siemon, titled "Fragmented and Trauma-Unaware: Health Information Systems for Refugees in Finland." Alex, this study investigates an interesting paradox: Ukrainian refugees in Finland have full statutory rights to healthcare, yet face significant barriers when using digital health platforms.

Expert: That's right, Anna. Under the EU Temporary Protection Directive, Ukrainian refugees in Finland are entitled to the same public healthcare services as local residents. However, this study demonstrates that legal entitlement does not automatically guarantee digital access. Digital public health systems are typically designed around a normative user model—someone who is calm, digitally credentialed with local bank authentication, and fluent in Finnish or Swedish. For displaced individuals managing war-related trauma and unfamiliar administrative systems, those assumptions break down.

Host: How did the authors examine this issue across the country?

Expert: The researchers used a qualitative, comparative design with 75 semi-structured interviews conducted in early 2025. They interviewed 35 Ukrainian refugees living across 22 Finnish municipalities, along with 40 organizational representatives, including healthcare administrators, municipal integration counsellors, and NGO leaders. They then used reflexive thematic analysis to compare the lived experiences of refugees with the administrative perspectives of service providers.

Host: Let's look at the findings. What happens when trauma-affected users try to navigate these systems?

Expert: The study highlights what the authors call psychologically conditioned digital exclusion. Trauma significantly reduces cognitive bandwidth, impairing memory and concentration. Participants reported that during acute distress, navigating fragmented portals or filling out complex forms was overwhelming. Even when individuals owned smartphones and possessed general digital literacy, cognitive depletion led many to abandon digital care-seeking altogether.

Host: There were also technical and infrastructure bottlenecks, especially around identity verification, correct?

Expert: Yes, and this is a central finding. In Finland, accessing national health portals requires strong digital identification via local bank credentials. Newly arrived refugees typically lack Finnish bank accounts during their initial year. Consequently, during their first twelve months—precisely when acute health and psychological needs often peak—refugees are structurally excluded from routine digital health tools.

Host: What did the study find regarding language and service awareness?

Expert: Language interfaces presented significant friction. Portals largely lacked Ukrainian options, and automated browser translations frequently failed or broke site functionality. Furthermore, high-quality, free mental health services did exist, but refugees were largely unaware of them. Information was not systematically delivered at arrival; instead, individuals discovered services months or years later through informal peer channels or word-of-mouth.

Host: The comparison between organizations and refugees also revealed contrasting viewpoints.

Expert: It did. Organizations tended to frame challenges in operational terms, such as resource limitations, interpreter wait times, or regulatory constraints like GDPR. In contrast, refugees experienced these barriers emotionally—reporting feelings of shame, anxiety, and perceived institutional exclusion when systems failed to accommodate their communication needs.

Host: Turning to practical applications, what can digital architects, healthcare administrators, and public sector managers take away from this study?

Expert: First, digital identity frameworks must provide interim authentication pathways. Systems should allow temporary legal documentation to serve as valid digital credentials rather than relying exclusively on commercial banking infrastructure. Second, organizations should integrate trauma-informed design principles into public systems by reducing user cognitive load, offering clear process updates, and implementing asynchronous, multilingual communication. Finally, service delivery requires proactive, multi-channel outreach—combining digital messaging, paper materials at registration, and trained peer navigators over time, rather than assuming users will discover static online portals on their own.

Host: The core lesson is that technological access must account for user context, psychological realities, and administrative transitions to achieve real inclusion. Thank you, Alex, for breaking down this study by Olena Ocheredko and Dominik Siemon. And thank you to our listeners for tuning in to A.I.S. Insights — powered by Living Knowledge.
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health information systems, digital divide, trauma-informed design, refugee integration, digital identity, healthcare access